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Welcome to the Foundation for Retinal Research & information about Leber's Congenital Amaurosis


Click above to find a walk!

The Foundation for Retinal Research is committed to finding treatments and cures for Retinal Degenerative Diseases and supporting the lives of affected families.

The Foundation for Retinal Research (FRR) was founded in 1998 at a time when very little was known or published about Leber's Congenital Amaurosis (LCA). Families affected by Leber's Congenital Amaurosis had a difficult time acquiring information and making connections to help them understand the eye disorder. The Foundation for Retinal Research has bridged the gap between families and research. This website offers people the most current medical and research information available, connects them to other families and provides links to services related to the field of blindness.

 

 

 

 


 

2006 FRR Conference - Cleveland, OH

A sample of some of the presentations are available to view below. Please click the link to view:

Betsy Brint, Founder of TFRR

David Brint, Founder of TFRR

Dr. Irene Maumenee
"Clinical Characterizations of LCA"

Dr. Jill Hopkins
"Clinical Characterizations: Phenotype/Genotype Relationhips"

Dr. Jean Bennett
"Gene Therapy"

Dr. Connie Cepko
"Photoreceptor Development
and Disease"

 

Dr. Edwin Stone
"Genetic Testing and LCA"

Dr. Stephen Daiger
"LCA Gene Updates"

Dr. Vas Sadda
"Stem Cell and Transplantation"

Dr. Eugene de Juan
"Commercial Pathway to LCA Treatment"

Dr. Robert Koenekoop
"Finding new LCA gene"

©2008 The Foundation for Retinal Research and its licensors.

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